Monday, April 8, 2013

One boob dance

Written Monday, April 8, 2013. 

Good news, I am doing the one boob dance today because I only have cancer in one boob.

I got the results from the Breast MRI that we did last Thursday where they biopsied my left breast. The biopsy showed benign breast tissue in the left breast. This is great because it means that our surgery plan for Wednesday remains unchanged. Only a lumpectomy on my right breast to rumor the tumor and 1 lymph node (so they can examine the lymph node to see if any of the cancer is spreading). 

Hooray! 

Thursday, April 4, 2013

Breast MRI #2

Written April 4th, 2013

Today I had the second Breast MRI at UCSF. Keith came with me. It was in the same location as the last Breast MRI that I had done on March 21st, which was nice that I was already familiar with the location and where to park, where to go. I got checked in for my appointment and Nurse Michael put an IV in my left arm. A Dr. Rita (she said she is a Fellow) walked me through a description of the process and a consent. Then after I soberly signed my consent I was able to take the prescription anti-anxiety medicine they had prescribed for me. I think it's a generic of Xanax. The medicine really helped quite a bit and I was so thankful for being able to have it. 

I went into the MRI room, where Nurse Meg painted betadine all over my left breast. So my entire left breast was a lovely orange color. Then Nurse Meg and MRI Technician Elda got me lowered face down onto the moving table. It's pretty similar position to when you do a face-down massage. There's a face cradle. We had to move my arms above my head, Superman flying position, so that I was positioned in the right way. Elda and Meg were amazingly caring, and nurturing, and professional. I really cannot say enough about how much they treated me so kindly today. They made sure I had plenty of padding under my arms and my shoulders so that I would be comfortable in that position for 45 minutes. They really impressed me today with the level of care they provided for me. Then they said that Dr. Dorota Wisner would be joining us. 

That was great news to me. Dora is married to Andy Wisner, one of Keith's best friends. Andy and Keith have been making homemade wine together for several years now. We've done lots of couple dates with Andy and Dora and we know their two beautiful children. Dora is super sweet and smart. I knew she was at UCSF and did something with Radiology but I didn't realize she specifically does Breast Radiology. I have always enjoyed spending time with Dora. In addition to having a very sweet and caring personality I also know that she's amazingly smart and accomplished. Keith has a lot of respect and admiration for Dora. So knowing that Dora was the Doctor who was going to be performing my procedure was immediately comforting to me. 

So, they did the MRI, several images, put the contrast dye in through the IV, took more images, I had ear plugs in and of course the Xanax was taking effect so I was pretty relaxed and calm. In fact I fell asleep at one point and I was dreaming of milkshakes. Then they woke me up and used the automatic button to move me out the MRI. 

They told me that they did see something still in the left breast. It's less than what they saw the first time but just to be safe they wanted to go ahead and do the biopsy. So the procedure involved giving me a shot of lidocaine to numb the area. It was a little sharp but really not bad. Then Dora said that I would feel some pressure or pulling but that I shouldn't feel anything sharp and if I did feel anything sharp to let her know. Then she guided in the biopsy needle, took some of my cells for the biopsy and placed the Titanium Clip in my breast. Before the procedure they had told me that they use a vacuum pressure to pull out the cells. I could kind of feel the removal a little and I could hear the suction a little - probably because of the ear plugs. I also was super relaxed and kind of sleepy on the Xanax so at least that's what I think I felt. ;-) 

Then we were done with the biopsy and they let me get up and they applied pressure to my breast where the incision was so stop the bleeding. The incision is little. If you took your pinky nail and pressed it into a piece of fruit that's about the size of the incision. They took me to a gurney outside the MRI room, had me lay down for a few minutes, and Nurse Meg talked to me for a little while while she kept the pressure on my incision and Dora talked to me for a little while and we talked about how great her son is doing - he's only 5 and he's learning how to mountain bike and Andy is really proud of him. :-) And then I got to put on some of my clothes - my yoga pants and my down vest over my hospital gown and we walked across the street in a skyway over to the Mammogram area where they did 2 images of my left breast to have a record of where they placed the titanium clip and then I was all set. 

Of course, after all of this first stop was to go get a milkshake. So Keith and I went to have lunch in the Haight at a place called Greenburgers which was super yummy. I got a bacon cheeseburger, sweet potato fries and a Chocolate Malt. Keith got a BBQ pulled pork sandwich and a Salted Caramel Coffee Milkshake. Needless to say we were quite full when we left Greenburgers.

Then Keith drove me home and Diane was here to greet us because today is her work from home day. That was really nice to see her smiling face and to know that she'd be downstairs all afternoon in case I needed anything. I went inside the house and I emailed my surgeon to let her know the procedure had gone well today. 

After that Keith headed off to work. He's been so busy at work lately. He had to stay until 10 PM last night to meet a deadline, then he was working in the waiting room while I did my procedure, then after he knew I was all set at home he went back to his office to work. Knowing how much stress he's under right now made me feel even more grateful that he carved out time to be there to support me.  

Then I pretty much fell asleep for the whole afternoon. My Dad called at 4:30 and that woke me up. Which was actually great because if I slept any longer I probably would have trouble going to bed tonight. 

Thursday, March 21, 2013

My honey is so supportive and sweet

Last night I got really sad thinking about all the information from the doctor. Keith saw that I was really sad and so he offered to write an email to the doctor so that I didn't have to do it myself. I felt really supported when he did that for me. Here's what he wrote. 

Hi Dr. Malik, 
I was writing for Kelly because she had some questions after the MRI and talking with the doctors today.  It sounds like they might have found something in the other breast that they thought could be cancer, this has her more worried than when we first saw you.  Her biggest concern is about chemotherapy.  In our first meeting the timeline went from surgery, to radiation, and then only if deemed necessary to chemotherapy.  Now she understands chemotherapy might begin before radiation.  She is worried that something has changed and there is a high chance that she will have chemotherapy.  Here are the questions relating to chemotherapy:
1.       Are you thinking of starting chemo for Kelly and skipping the radiation (or having radiation at a later date)?
2.       Is there new info that will change the timeline for making the decision to start chemo?
3.       Do you have info that will let you estimate of the chances of Kelly needing chemo?
Thanks for taking the time to explain all of the details of the process during our first visit.  It was nice not to feel rushed and all the other staff was very organized and made Kelly feel like she was in good hands. 
Thanks,
Keith and Kelly

Potentially not so good news after Breast MRI #1

My tumor is in my right breast. When you get breast cancer your nipple is the center of the clock. My tumor is at 12 o'clock in my right breast.

I had a Breast MRI done as preparation for my surgery. My surgeon called to let me know that they saw something in the images from the MRI in my left breast. They're going to wait until I'm on Day 4 of my next period and redo the MRI with Contrast and then if what they saw is still there (and not just related to where I am in my current cycle) then they'll do a needle biopsy at that appointment.

Wednesday, March 13, 2013

Full update

Written March 13, 2013.
My surgeon is pretty great. Her name is Dr. Amara Malik. After we introduced ourselves the first thing she said to me was "You're going to be fine, this is just a nuisance and we'll get through it and at the end you'll be great", then she said "I'm going to tell you a million other things today, if you don't remember anything else, that's alright, the only thing you need to remember is that you're going to be just fine". 

She spent several hours patiently explaining everything to us and allowing us to ask questions.  We scheduled the lumpectomy for Wednesday, March 27th. About 4 - 6 weeks after my surgery I'll probably be going through radiation for 5 weeks. After that hormone treatment. Maybe or maybe not chemotherapy. Hoping not to need chemotherapy. 

I'm still processing all this information. I took PTO today. I kind of just wanted to crawl into a hole and hide for a bit. But I actually got through a lot of old paperwork which felt good. 

My Dad is going to come out for the week of the surgery. I'm really impressed. He's going to fly out here by himself. Knowing that he doesn't like flying and he rarely travels without his wife it means a lot that he's doing that for me. We booked his flight today. 

My good friend Karin from Minneapolis was already planning to come out for a visit from Friday, March 29th - April 1st. She has generously offered to forego spa and wine tasting to hang out with me while I recover. So there will be a little bit of overlap between her visit and my Dad's. Keith will be here for the day of the surgery but after that I think he's going to join some friends who already had a rafting trip planned. He's delaying joining them for a day. 

My good friend Rena is coming over tomorrow night to help me do some meal planning for the next few weeks. I'm trying to improve my diet. Today I had a several smoothies (Bok Choy with frozen Pineapple and ginger) and then Kale with Pineapple. So yummy! I'm going to try to avoid sugar, wheat, meat, processed foods, and alcohol for the next few weeks. Hopefully it'll have a positive impact on my body's ability to fight whatever it needs to fight and help me get in good shape to recover from the surgery.

Monday, March 11, 2013

It's Cancer

I just went this morning to my regular doctor. It is cancer. It's between Stage 1 and Stage 2. It's 2 centimeters in size. I have another appointment at 1pm today at California Pacific Medical Center to see a Cancer Specialist (I think that is the title of the doctor I'm supposed to see, I can't really remember). They are sending me to CPMC instead of UCSF because I guess UCSF can't get anyone to see me for a month and my doctor thinks that is an unacceptable amount of time to wait. I'm glad I get to see someone today. Keith came with me this morning and he's going to be there also this afternoon. That's the update. I'll keep you posted. Love you all!

Friday, March 8, 2013

Not very good news

Written Friday, March 8th, 2013

My Primary Care doctor just called me. They are very concerned. They think it's probably cancer. I'll have to go in on Monday or Tuesday for a full sample biopsy. Then probably in the next week or two I'll probably have to get whatever it is removed. Then chemotherapy after that.  

I still need to call my Dad and my brother. I just talked to my Mom. Keith is coming to get me at work. I think we're going to have dinner with some friends tonight. It's a lot to deal with right now. I'm just taking things little by little right now.